March 14, 2015
Severe and Enduring Hope
Severe and Enduring Eating Disorders.
This term, mostly used by researchers and clinicians operating in the context of national health systems around the world, is the equivalent of "We've Given Up." It is a sign that the system accepts that recovery is no longer the goal, only a sort of palliative half-life. Families and clinicians switch gears to "quality of life" instead of recovery.
Well, I am a parent and I will never give up. I don't know any parent who will, really. While there is any breath, any chance, any avenue or angle or possibility we don't and should not accept concepts like this.
Treatment may have failed the person, and there may not be any law that compels their care, and the patient may indeed be lost to anosognosia and misery right now but that is not THEIR problem it is ours. It is not their fault or choice it is ours. The responsibility is ours, as a society.
SEED is a term, and there are others like it, for when we have failed to diagnose and intervene early and well, failed to follow up, failed at relapse prevention, failed to address comorbidities, failed to recognize anosognosia, failed to account in our laws and customs and healthcare systems. But the failure is ours as a society, not the patient's. If we are to label anything it is ourselves, not the patient.
The patient may still be suffering but they do not have SEED, we have SEE failure to treat.
Thank you to Lisa at F.E.A.S.T. for her wonderful post on this topic this week. Parents see this differently.