July 17, 2013

Consensus Guidelines project: please help?

posting a request forwarded through my friend, June Alexander:


Opportunity to share wisdom from first hand experience is always to be welcomed. I believe that carers and consumers (sufferers) are a largely untapped resource in building evidence-based research in the eating disorder field. Hence my excitement at this call which comes via my dear friend and fantastic researcher, Dr Hunna Watson in Western Australia. One of Hunna's students, Jacqueline Le Mesurier, seeks participants for her "Consensus Guidelines on Peer Support in Eating Disorders" research study.http://www.junealexander.com/2013/07/carers-needed-for-peer-support-research/

July 10, 2013

Research participation wanted!

Posted by request:

Hello,

I'm currently conducting Economics research at the University of Missouri - St. Louis under supervision of Dr. Lea-Rachel Kosnik. 

I'm writing you as my research is centered around the price-elasticity of demand of eating disorder treatment. What does that mean? Essentially, how much does cost impact the willingness of someone to go to treatment. This relationship has implications for both recovery and for insurance so I am interested in uncovering what that relationship is. Also, whether or not that relationship is different than those historically found for mental health care and health care, in general. 

I think it's incredibly important to connect with as many segments of the eating disorder population as possible. For instance I'm contacting you, because I want to make sure to attempt to include those that want to try less traditional (or expected) treatment (such as Maudsley). Additionally, those that are older, those that have eating disorders that are less common (as you know, BED just "officially" became an eating disorder), males, athletes, and even those identifying themselves as pro-ana.

I would love it if you would be willing to share my survey on your blog. I truly do believe the research is important, especially since no research like it exists - at present - for eating disorders. Eating disorder treatment is oftentimes quite expensive so it's important to derive what relationship the cost of it has with willingness. 

My survey can be found at https://www.surveymonkey.com/s/priceelasticity1 , but if you would like a PDF version of the questions (as found in the survey) beforehand I would be more than happy to email that to you as well as answer ANY questions.

This research has received IRB Exemption Approval (and I can provide proof of that if necessary).

Thank you so much,
Kristie Ferreira
Sociology and Business Major, Economics Minor
University of Missouri-St. Louis
kfbp7@umsl.edu

July 3, 2013

Charlotte's Web

Charlotte is for many of us like Cher and Liberace: her first name is enough. Everyone knows Charlotte. Everyone has a story: a time they rose from shrinking fear to do something brave, a moment they realized they could do something they thought unthinkable, a quote so clever they taped it to their wall. We all think she's ours, but I can't imagine anyone so very much her own.

Charlotte does everything her way, including telling the world really difficult news. There is no artifice to this woman as she participates in the world so fully and directly. At the same time, she is the least attention-seeking person I know.

I have never really believed in "denial." I am sure this is because I've not really tried it. I can report now being in genuine thrall to its charms. Denial feels like a perfectly respectable and practical refuge.

July 2, 2013

Why read memoirs?

Solid, correct information is essential to good healthcare and compliance. Good stories don't hurt, either. Hearing a family's story about facing similar challenges can be the difference between "knowing" and "believing."

My dear friend, June Alexander, is working on a project promoting the use of narratives in training nurses. Please help her with this worthy project!

Readers are invited to share their favourite quotes/excerpts from helpful memoirs - I am co-authoring a research paper on the usefulness of memoirs in educating mental health nurses. I am particularly interested in short passages, even one-liners, that the readers have found particularly helpful, and why this resonated and connected so strongly with them.  We want to show how narratives can help the reader understand aspects of the illness/recovery journey, the tipping point  and other phases. The ultimate aim of this work is to provide mental health students with a guided reading of memoirs,  so that they can be a) more understanding and b) more facilitative of change … helping them understand what an eating disorders like from 'the inside' rather than seeing it purely through clinical eyes. 
Reading memoirs, as well as engaging in guided discussions about them, may help future clinicians realise the importance of empathy and unconditional positive regard in establishing a collaborative relationship. This Paper will argue how learning through memoirs of illness and recovery benefits students. It will share some of the creative ways selected biographies can be used to help transform the perspective of health profession students. It is also part of a project to build an evidence base in the use of narratives for promoting insight, change and empowerment within nursing, sharing ideas to support the confidence and creativity of other educators in the use of narratives in various forms to teach essential nursing concepts. Email: june@junealexander.com